Aaron's Hyper IgM Journey

Tuesday, April 22, 2014

April Showers

With all the "gloomy rainy" days we have had in April, May is sure to be full of the most beautiful "flowers."

Aaron's tummy is bigger than ever. He has thrown up several times lately after drinking. We believe this is because the pressure on his stomach from his enlarged intestines.

His mood has brought me to tears. For two weeks, his only method of communication is a tantrum. Asking him if he wants juice or water results in a total meltdown. When the nanny is here, he just stares out of the window all day.

Thankfully, his mood has improved this past week. I have been working hard with him. Timeouts, ignoring him, and lots of hugs. Being a parent really is tough work.

On a bright note, Aaron's schooling is going well. Our lessons are a bit inconsistent. We fit lessons in when we can. Aaron is starting to read simple words. He looks forward to earning his stars and getting rewards. Right now he always chooses to go to the pie shop.

Michael and I have decided to admit Aaron to the hospital and try gut rest. He will not be allowed to eat or drink for 48 hours. He will be on IV nutrition. Our doctor doesn't want to do this. She doesn't feel the results are very good and not worth starving a child. We feel that we have to try. Aaron's mobility and mood are being affected too much.

I would love any advice on how to entertain and soothe a child who is not allowed to eat for two days. I am dreading this, but praying it works. I am not strong when I see Aaron suffering.

I will end with some super, fantastic, over the top news. Aaron's skin is better than ever. It feels soft!!!! It doesn't look great, but I think his gvhd is starting to calm down.

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