Aaron's Hyper IgM Journey

Wednesday, September 21, 2011

So Many Blessing

I never asked why this is happening to us. I have wondered, but never dwelt on it much. What I do realize is that it has opened so many hearts and really brought out the good in people. People are just cheering us on every step of the way. Aaron brings so much joy to the world. Today the National Foundation for Transplants asked if Aaron could be featured in their holiday direct mail letter for their annual fund. They said he has stolen their hearts! Thank you to all those who are supporting us. The road ahead is a tough one, but we will come out ahead.

Saturday, September 17, 2011

Our First Fundraiser

Thank you Brittni, Laura, and Jeff! What a turnout. We made $375 in 5 hours. Not only did we sell tons of hot dogs, but people were generous and donated without even eating hot dogs. I ate 2 hotdogs and I don't even like them. However, I must say Laura can really cook a good hot dog. They tasted great!

There were balloons to represent all local sports fans... Gators!!!, UCF, and FSU. Laura and Brittni spent their day off to do this. What generous people they are. We are so grateful. I will be out of work for at least 5 months, probably longer. The donations will allow us to continue to provide care for Aaron during this time.

God is good and life is great. It takes tough times to realize how fortunate we are.

Thursday, September 15, 2011

Visit from Pluto

Aaron got a visit from Pluto. He had just been given benadryl and was so out of it that he barely noticed Pluto was there. Pluto gave him a bag of goodies... coloring book, stickers, and a stuffed Mickey Mouse.

Sunday, September 11, 2011

Planking Atlanta


What a great conference! The conference was for survivors and dealing with life after a transplant. I was the only one that went before having a transplant. I just want to know exactly what to expect and how to prepare.

I was glad to hear that about half of the parents chose Cincinnati Children's Hospital for their children's transplants. CCH is really the best place to go.

I also learned that once the transplant is over, it is far from over. He could possibly face a lifetime of complications from the transplant. However, most of the complications are manageable and would give him a better quality of life than if we didn't do the transplant.

I could go on and on about the conference, but I will stop now. I am glad I went and feel even more prepared for the journey ahead. I will definitely try to go next year. Anyone want to go with me???

Oh and about Atlanta... I am not a huge fan at all. Maybe it is because I forgot my sunglasses and the windshield of the rental car was dirty and I could barely see where I was going. Or was it the traffic lights that were so small? Or all the one way streets that wound around? Or all the people that just walk out in the middle of the road when cars are driving by?