Aaron's Hyper IgM Journey

Monday, January 7, 2013


I am already counting the days to 2014 (358 days to go).  One of these years just has to get better.  We found out today that Aaron has developed cataracts from the prolong steroids.  He will need surgery.  He cannot have surgery now because the risk of infection is too high.  However, if he goes too long without surgery, he can go blind.  As his vision gets worse from the cataracts, his brain will process vision less and less and begin to shut down its visual response.  Even with cataract surgery, if the brain has shut off vision, he will be blind. 

His kidneys are also still spilling huge amounts of protein into the urine which means they are still being hit hard from the medication.

Aaron's GVHD has to get better and really soon.  He has to get off these medications. 

I try to stay positive with all that happens, but I don't feel like it today.  Today I am going to be angry.  Tomorrow I will be positive again.

No comments:

Post a Comment