Aaron. He never stops amazing me. Before transplant I had the most beautiful, energetic and happy child. I couldn't believe God had blessed me with the coolest kid in the world. After transplant, I saw my child suffer from pain, fear, anxiety, eating problems, motor skill disorders and much more. I actually mourned the loss of the child I gave birth to and began to accept the new child that he had become.
In my wildest dreams, I would have never believed the impossible to happen. My Aaron, the funny, happy, energetic son has returned!!!! Aaron is happier than I have seen him in years. He makes jokes all day. He doesn't scream at the doctors anymore. In fact, he pretends baby dog has eaten chocolate and he has the dog throw up on the doctors and nurses instead. He is having fun with OT and PT and anyone who comes to play with him. He never would interact with people before unless to scream at them.
Aaron still requires oxygen at night. We are going to start trying to wean his tpn. He drinks a ton but doesn't eat enough. We have speech therapy helping with that. He is also not strong enough yet to walk much. His skin looks better than ever. In fact, overall, he hasn't looked this good since transplant. We will definitely be in the hospital for Christmas. Aaron loves the hospital, so he won't mind a bit.
We also had Serena for a week. I absolutely love that girl!!! She and Aaron had tons of fun. They made snowflakes and snowmen. They sang songs. Serena really enjoyed music therapy and made up all the songs during their one hour sessions. Her creativity blows me away. She even helped Aaron with his school work.
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