Dr. Sleasman is the pediatric Immunologist in Tampa. He has been directing Aaron's care since he was admitted to Arnold Palmer in September. He says Aaron looks great. Aaron has gained almost three pounds in three and a half weeks. He started walking without holding on yesterday. He walks all over the house. He babbles and babbles. Looking at him, you would never know he was sick!
Dr. Sleasman wants to do a bone marrow transplant as soon as possible. They began the HLA typing necessary for the bone marrow matching. The results should be back in 2 weeks. We should know by then if there is a match for Aaron. Please pray for Aaron that he can find a match. The doctor says the sooner Aaron has a transplant the less likely his body will develop a rejection to the transplant.
We met the transplant team. They are incredible people. Everyone was super nice and made us feel confident for Aaron's future.
Thursday, November 11, 2010
Thursday, November 4, 2010
Aaron's 2nd Halloween
Last year Aaron went out Halloween night even though he was only 2 weeks old. I remember how proud I was to show off my little pumpkin. What a cutie! This year we didn't go trick or treating because Aaron is not supposed to be around people yet. Instead we took him for walks during the day to look at all the Halloween decorations. He loved them. He would kick up his legs and laugh and he even sang once for his Grandma Cindy.
Saturday, October 23, 2010
Aaron's 1st Birthday
What fun Aaron had on his Birthday. We actually celebrated Thurs Oct 14th (a day early) because I had to work on his birthday. The day started with a huge birthday cake and sneaking in a balloon that was not allowed. The hospital has a latex free policy, but they let Aaron play with it for the morning. Grandma Cindy had the room very festive with birthday decorations and party hats.
Aunt Katie and Granny Carol came and brought lots of gifts. Aaron's favorite was the wrapping paper and bows to play with.
The musician came in and sang along with the chaplain and the child life director.
Then Aaron had to go into surgery to stop his ulcers from bleeding. After 3 hours of surgery and post-op, he got his first birthday cake. It was the first thing he had eaten in days and he loved it!
After Aaron got home we celebrated again with Daddy and he tried out his Rock, Roll, and Ride trike which he also loves. He is so proud of himself.
Aunt Katie and Granny Carol came and brought lots of gifts. Aaron's favorite was the wrapping paper and bows to play with.
The musician came in and sang along with the chaplain and the child life director.
Then Aaron had to go into surgery to stop his ulcers from bleeding. After 3 hours of surgery and post-op, he got his first birthday cake. It was the first thing he had eaten in days and he loved it!
After Aaron got home we celebrated again with Daddy and he tried out his Rock, Roll, and Ride trike which he also loves. He is so proud of himself.
Thursday, October 14, 2010
3 1/2 weeks at Arnold Palmer Hospital
Everything begin at 1:30pm Friday September 24th. Aaron had an appointment with the pulmonary doctors. He was getting his initial vitals checked when his oxygen saturation registered in the high 30s. The nurse called EMS and sent Aaron and I by ambulance to the emergency room. Michael followed in his truck.
After a long night in the emergency room, the physicians determined Aaron had a very severe lung infection that covered almost his entire lungs and his immune system was not normal. Aaron was then admitted to the hospital and put on oxygen and antibiotics.
By Saturday night Aaron's condition was determined to be so severe that he was intubated with a ventilator and moved to the ICU. At this point he had the ICU, infectious disease, and pulmonary doctors following him closely at the hospital as well as the pediatric immunologist in Tampa. The cultures also came back positive for PCP pneumonia (extremely rare in infants). He began IV Bactrim (which is on a nationwide shortage and only reserved for patients with PCP pneumonia).
Michael had to leave for 5 weeks of flight training with ExpressJet on Sunday. Thankfully, Grandma Cindy agreed to leave the Turquoise Angel studio in Tubac, Az to come help her grandson for as long as he needed her.
Over the next week Aaron had a dozen tests performed on him. Finally, a blood sample shipped overnight to Cincinnati confirmed a diagnosis of x-linked hyper IgM immunodeficiency. This condition is seen in 2 out of a million people.
After 2 weeks of intensive care, antibiotics and ventilation, Aaron's lungs were doing amazing. He surprised all his doctors with his recovery. However, Aaron had been having bloody stools and required 2 blood transfusions in the past couple of days. The GI doctor scoped him and found 8 ulcers but felt that they were no longer active and did not require intervention at the time.
Then... the scariest day of my life - Monday December 11th. Holly, the music therapist came by and was singing with her red guitar while Aaron was shaking his maracas. All of a sudden he coughed and coughed and blood spewed out of his mouth twice. The next day Dr. Mehta took Aaron to the OR and sealed up his largest ulcer. He was also given another blood transfusion. Thankfully, he has not had anymore blood loss.
Today, he had a port placement for the monthly IV infusions he will need to help maintain his immune system. We are very hopeful about his future. He will need a bone marrow transplant. An identical match would result in a cure. A bone marrow transplant should occur within 9 months to a year as long as we can find a good match.
Through this experience we have learned the enormity of God's love. We have never experienced more amazing people, caring nurses, compassionate doctors, and loving friends and family. We have people praying for us in Orlando, Trinidad, Washington, Texas, Arizona, Mexico, and many others. If there is one thing we have gained from this difficult time is how good people really are.
After a long night in the emergency room, the physicians determined Aaron had a very severe lung infection that covered almost his entire lungs and his immune system was not normal. Aaron was then admitted to the hospital and put on oxygen and antibiotics.
By Saturday night Aaron's condition was determined to be so severe that he was intubated with a ventilator and moved to the ICU. At this point he had the ICU, infectious disease, and pulmonary doctors following him closely at the hospital as well as the pediatric immunologist in Tampa. The cultures also came back positive for PCP pneumonia (extremely rare in infants). He began IV Bactrim (which is on a nationwide shortage and only reserved for patients with PCP pneumonia).
Michael had to leave for 5 weeks of flight training with ExpressJet on Sunday. Thankfully, Grandma Cindy agreed to leave the Turquoise Angel studio in Tubac, Az to come help her grandson for as long as he needed her.
Over the next week Aaron had a dozen tests performed on him. Finally, a blood sample shipped overnight to Cincinnati confirmed a diagnosis of x-linked hyper IgM immunodeficiency. This condition is seen in 2 out of a million people.
After 2 weeks of intensive care, antibiotics and ventilation, Aaron's lungs were doing amazing. He surprised all his doctors with his recovery. However, Aaron had been having bloody stools and required 2 blood transfusions in the past couple of days. The GI doctor scoped him and found 8 ulcers but felt that they were no longer active and did not require intervention at the time.
Then... the scariest day of my life - Monday December 11th. Holly, the music therapist came by and was singing with her red guitar while Aaron was shaking his maracas. All of a sudden he coughed and coughed and blood spewed out of his mouth twice. The next day Dr. Mehta took Aaron to the OR and sealed up his largest ulcer. He was also given another blood transfusion. Thankfully, he has not had anymore blood loss.
Today, he had a port placement for the monthly IV infusions he will need to help maintain his immune system. We are very hopeful about his future. He will need a bone marrow transplant. An identical match would result in a cure. A bone marrow transplant should occur within 9 months to a year as long as we can find a good match.
Through this experience we have learned the enormity of God's love. We have never experienced more amazing people, caring nurses, compassionate doctors, and loving friends and family. We have people praying for us in Orlando, Trinidad, Washington, Texas, Arizona, Mexico, and many others. If there is one thing we have gained from this difficult time is how good people really are.
Friday, September 10, 2010
Bieber Fever hit the Wolsey house
Aaron got pretty excited when Justin Bieber started singing on TV.
Sunday, September 5, 2010
Swimming with my parents
So after my swimming lessons earlier this summer I am ready to get to the pool. After a few laps I realized my mom and mostly my dad could use a few pointers. So here I am giving the old man some lessons while my mom took pictures so she could review later. I would say the lessons were worth it.
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