Serena reading to Aaron

Serena LOVES to read to Aaron. The trick is getting him to sit still for an entire book. Serena was successful this morning since she picked "Roadwork" to read to Aaron. He loves trucks of all kinds.

Last infusion!

Aaron is at the hospital getting his last IV infusion (we hope)! We spent from 8am to 2pm at the infusion suite. Since we were the first to arrive that day, we got the best suite. We were surrounded by windows. He is a real champ. The nurses are amazed that he doesn't cry or complain when they are sticking him or poking at him every so often. He is enjoying Dora, currently his favorite cartoon. We even got free Olive Garden thanks to B.A.S.E. Camp Children's Cancer Foundation. Most of the children needing infusions are cancer patients. Aaron's condition is so rare that no one in this hospital has ever seen it before.

Next month we will switch to subcutaneous infusions at home. These will be much shorter but we will do them once a week.

Visit from Aidan

Serena and uncle Kerlan tried to have some tea, but the Aaron and Aidan crashed the party.

Superman

Little man to the rescue!

Trip toTampa

The trips to Tampa are getting much easier. Aaron has a lot of movies now that he enjoys watching in the car. This summer he also has his sister to play with. Daddy finally made the trip with us for the first time. We went to consult with the pediatric surgeons to remove Aaron's port. Thankfully this was a quick and easy trip. Serena enjoyed all the kids activities in the waiting room. We bring toys for Aaron since he cannot touch anything that anyone else has touched.

We got a big laugh as we pulled into the parking garage. A float full of people dressed as cows were waving at us. A big sign on the float read "Free chicken tomorrow." We realized then that is was Chic-Fil-A.

Happy 4th!

We made chewy gingerbread cookies and popped popcorn and watched the fireworks from the porch. Too bad Aaron slept right through it all. Serena and I had fun!

Bubble Fun