Aaron's Hyper IgM Journey

Monday, December 31, 2012

Wrapping up December

The end of the year is here and I am ready to be rid of 2012!!! We have been blessed in many ways and for that I am forever grateful. However, I never ever want to do any of that again.

I started back to work in Orlando and I am very happy with my new store. The customers are nice. Michael and I are taking turns caring for Aaron. We are like strangers lately. I arrive in the morning and he leaves the same day in the afternoon and vice versa.

I spent Christmas in Orlando but got to see Aaron open his presents via FaceTime. That was really special. I went to Stan and Judy's for dinner. That was really nice. The food was excellent!

So far the winter in Cincy is colder this year than last year. There has been snow several times and it has stuck to the ground for days. I drove in the snow for the first time in my life. I was very scared.

I said that by the end of December I would assess the photophoresis. I do think it is helping. Aaron hasn't been admitted to the hospital for two months. He hasn't had diarrhea. However, he has been itching like crazy and the gvhd has flared all over his body. It doesn't look horrible but this is a setback. He had to go back up on his steroids today. I feel like screaming. I had hopes that 2013 would bring hope and health and only good things. I am also noticing more and more that Aaron has cognitive setbacks. He was soooo smart and sharp before. Now he is slower. I pray he will not always be delayed. Chemo is known to do this. It is called chemobrain.

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1 comment:

  1. Hang in there. Hopefully this latest flare up will slow down quickly. Miss you!