Aaron's Hyper IgM Journey

Thursday, May 29, 2014

Aaron's first major ouchie (sort of)

We arrived in Cincinnati a day early to do a DEXA bone scan. Results came back with a Z-score of -4.5. That is pretty darn awful. On the bright side, he can recover quite a bit as long as we can get him off these steroids.

Wednesday morning we went for his treatment. I got him out of the car, he tripped over my foot and boom. He fell on his knees and hands and got his first nasty scrape of his life. He has had many ouchies caused by poking, chemo, and gvhd. However, this was his first normal ouchie. He did a pretty good job scraping a good amount of skin right off his knee. He was pretty tough about it and enjoyed watching the nurses clean it up.

The rest of Aaron's body is falling apart. Eyes are getting worse; liver and kidneys are pretty much lousy; and his blood pressures would send a normal person straight to the ER to avoid a stroke. I am praying that he can get off these steroids. Thanks to some awesome moms that I have never met, I am hopeful that Aaron can still recover. A network of people on Facebook has given me immense support. Their children have been down the same road and are doing relatively well now.

As I have been preparing Aaron's homeschooling lessons for next year, I have felt overwhelming joy. God has been good to us! Sometimes it is hard to see, but lately I am seeing it. Aside from the fact that Aaron's illness just plain sucks, we have been given so many other positives. I have gotten to spend so much time with Aaron that I never would have otherwise. For the upcoming school year, I have come up with some super fun Bible studies, science projects, and other activities. I have done extensive research and found the best reading and math curriculums for Aaron that far exceed what the Common Core could ever teach him. I am looking forward to joining a homeschooling group as soon as his immune system improves that will give Aaron some fantastic peers to build friendships.

Please send some prayer or light or whatever you believe in our way. Aaron has got to get better soon!!!

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Location:Crescent Ave,Covington,United States

1 comment:

  1. always always always praying for Aaron! Keep focusing on those blessings around you and his healing will be here before you know it! much love to all of you <3