Aaron's Hyper IgM Journey

Saturday, December 31, 2011

Sleepy Day (Day -3)


The yuckies finally hit Aaron pretty hard! He has been throwing up very forcefully over and over again. The doctor decided to add a second and then a third anti-nausea medicine to help him. The medication made him very sleepy.

We also learned that his transplant has been moved to January 4th. The donor's cells will not be finished processing in time for the 3rd. This should not affect anything.

Friday, December 30, 2011

Little Beckham (Day -4)



Aaron loved to kick his Thomas the Train ball up and down the halls of the Ronald McDonald House. One of the volunteers would call him "Little Beckham." He now has a mini beach ball that we kick around his room. He threw up pretty bad today and has started having diarrhea. As you can see, none of that is slowing him down any. He is still very happy and active.

Thursday, December 29, 2011

Today Aaron starts a different type of Chemo.







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Wednesday, December 28, 2011

Day of Rest (Day -6)

Today was supposed to be a day of rest, meaning no chemo. Aaron did not have chemo, but he did not rest well. His cold is really getting to him and he is sneezing a lot. He threw up today. This was actually a good thing. He was sluggish all day until he threw up. Afterwards, he was ready to play and jump and have a good time. He ate one french fry and one bite of cottage cheese and nothing else all day. His pants are starting to fall off of him. He still looks good and has some energy. The doctors say not to worry, so I am not going to worry.

A Day With Daddy (Day -7)


Daddy came back from working. He spent the day with Aaron while I caught up on laundry and phone calls. The day was a little rough since Michael did not know the routine. Neither of them slept much that night. I finally got a good night sleep. :) Here is a picture of Aaron's new tent bed. He calls it "the green bed." This is much better than the crib.

Monday, December 26, 2011

We are sick (Day -8)

I had a cold and got over it. I wore a mask, but Aaron still got sick. He tested positive for parainfluenza 1 virus. This is a common cold. They are going to start giving him his IVIG once a week now to help boost his immunity. The doctors are not worried and say it will pass just like it would for anyone else. Aaron has had a little sniffles and sneezing, but not bad. Other than that, Aaron has not shown any adverse effects from the chemo so far. He is a tough little guy. In fact he has eaten better today than he did the last two days. His diet consists of M&Ms, teddy grams, frosting off of cupcakes, goldfish crackers, chocolate bars, cheerios, and cheese quesadilla. Most parents would probably be horrified by this, but I am the happiest Mom in the world!!!

Sunday, December 25, 2011

Merry Christmas (Day -9)


Santa made two stops for Aaron this year. We woke up to presents in the hospital and presents were delivered to the Ronald McDonald House. We opened them slowly throughout the day. Christmas was a fun day. Aaron did not get sick at all for his second day of chemo. We also upgraded Aaron to a Posey bed. This is a hospital bed with a tent around it. This is sooo much better than his old cage crib. When he wakes up in the middle of the night, I can lay with him.