Aaron's Hyper IgM Journey

Wednesday, March 21, 2012

A Summer in Cincy

We had a long talk with Aaron's doctor and we got some news.  We will be staying in Cincinnati until Labor Day (if not longer).  Aaron is on REALLY high doses of steroids.  The steroids keep his GVH down.  However, the high doses are preventing his new immune system from being able to generate.  The doctor must lower his steroids knowing that the GVH will get worse.  They will watch Aaron very closely to monitor things.  The doctor is hoping to have the GVH and immune system under control by Memorial Day and then slowly wean off the steroids towards Labor Day (the doctor does everything according to Holidays).  The doctor said if not Labor Day, then hopefully by Canadian Thanksgiving (never heard of it, but apparently it is in October).

Although I am not excited about the news, it really wasn't unexpected.  My only concern is my job.  I would really like to keep it, but that is unpredictable right now.  The most important thing is to get Aaron better.

1 comment:

  1. Praying for you to keep your job!