Aaron's Hyper IgM Journey

Sunday, March 18, 2012

One week and in the ER

Overall, Aaron is stable. We have been out of the hospital for a week now. He has enjoyed his new routine at RMH. We found a spot nearby that we can sit in the car and watch trains go by. In twenty minutes we can see four trains. Aaron throws a fit every time we leave. He could sit all day waiting for trains and watch them go by. We wave at them. Today we got a horn back at us!

His skin GVH is getting worse. We are sitting in the ER right now. They decided to give him a dose of IV steroids and follow up in clinic tomorrow. We were also told that we will be in Cincinnati at least a month longer than planned. Aaron's GVH has to be under control before we can go.

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  1. Will be praying his GVH gets better so you all can go home soon.

  2. How wonderful on the train news. And "oh no!" On the GVH! We continue to pray that it goes far, far away... Xo

  3. Sorry to hear you will be there an extra month BUT you do not have 4 trains in 20 minutes in Orlando....so what should you do? We think of you daily & enjoy the updates. Love - Janice