Aaron was released from the hospital on Tuesday since he is doing well and very stable. Thankfully the steroids work for him. He is eating a ton again thanks to the steroids. He is currently off IV fluids and tube feeds. This means extra sleep for everyone. Woo hoo!
We are not out of the clear any time or any year soon. The doctors say he is showing signs of chronic gvhd and it will take six months to a year or longer to clear up. Chronic gvhd ususlly burns out by five years post transplant. They will be switching around his medications a lot over the next few months and want Aaron to stay local until he is stable on the new regimen.
Aaron is better than ever. He is really happy and enjoying life. I don't think he has been this good since before his chemotherapy last December. The doctors are amazed at how quickly Aaron recovered; they said it is rare to see a patient respond so quickly. He is happier than ever. Makes us wonder how bad he has really been feeling up until now.
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Sounds just about right. Mine is almost all gone and I am 5 years 2 months. One day at a time. Love u.
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