Aaron's Hyper IgM Journey

Friday, December 2, 2011

The Rest of the First Week

The week has not let up any. In fact, I don't think I remember most of it. My goal is just to get Aaron to each appointment on time and I feel like we have succeeded!!!

Tuesday... Aaron had a PICC line placed. This allows blood samples to be taken without poking Aaron. He fussed a little bit, but got through it pretty well. We spent time with the home health nurse learning how to take care of the PICC line. We have to inject heparin twice a day to keep it from clogging or getting infected.

Wednesday... We had a visit from home health at 8:30am. We went to cardiology at 9:30am for an echocardiogram and EKG. These are usually done under sedation for this age group. However, they said Aaron is the easiest kid they have ever seen and decided he can handle it. He laid still the whole time watching Micky Mouse Clubhouse and didn't make a sound. Later, Aaron had more labs taken.

Thursday... Aaron had a CT scan of his whole body. Again, they were supposed to but him under anesthesia. Aaron sat still the whole time and did not have to be put under sedation. We are so proud of him.

Friday... Aaron had to do a 4 hour test of his kidneys called a GFR.

By the end of the week, most of the results came in and they told us that Aaron's results are the best they have ever seen in a pretransplant work up. Thank you Lord!!!

1 comment:

  1. It's really great to keep hearing such positive news/outcomes. Can't wait to celebrate with you all when you're on the other side of this journey! XOXOXOXO Revelle