Aaron's Hyper IgM Journey

Friday, December 16, 2011

A tough day

Since Aaron had a long day we weren't able to get his morning run in. He had a full eye exam with dilation. Two hours later, we met with the doctor. She was excellent but only brought bad news. Aaron's eye surgery was not successful in correcting Aaron's lazy eye and he will unlikely ever have depth perception. The doctor said he won't be able to be a pilot like his daddy and grandfather. I remember my father telling me a story about how he was told he could never pilot an airplane due to his vision, but he went on to become an F4 pilot in the air force and a pilot for Southwest Airlines (the best airline in the industry). We believe Aaron will be able to do whatever his heart desires.

By this time, Aaron missed his nap and his lunch. He was miserable. We had a meeting with the BMT doctor to go over the consent forms and timeline. This was our chance to get any questions answered. Aaron threw his first full-blown tantrum the entire time. He kept screaming "I want to run." The meeting didn't go well but we believe we are aware of the risks and benefits of the transplant.


  1. I am sorry to hear about the bad news, I agree with, you should still be confident he will be able to do anything he wants to do. Just because the doctor says one thing, it does not mean it is going to be that way. Hang in there guys, everyone is thinking about and praying for you - Craig.

  2. Sorry you had such a rough day. It is never easy when they want to run or do something that you did not have planned.