Aaron's Hyper IgM Journey

Sunday, March 18, 2012

One week and in the ER






Overall, Aaron is stable. We have been out of the hospital for a week now. He has enjoyed his new routine at RMH. We found a spot nearby that we can sit in the car and watch trains go by. In twenty minutes we can see four trains. Aaron throws a fit every time we leave. He could sit all day waiting for trains and watch them go by. We wave at them. Today we got a horn back at us!

His skin GVH is getting worse. We are sitting in the ER right now. They decided to give him a dose of IV steroids and follow up in clinic tomorrow. We were also told that we will be in Cincinnati at least a month longer than planned. Aaron's GVH has to be under control before we can go.

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3 comments:

  1. Will be praying his GVH gets better so you all can go home soon.

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  2. How wonderful on the train news. And "oh no!" On the GVH! We continue to pray that it goes far, far away... Xo

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  3. Sorry to hear you will be there an extra month BUT you do not have 4 trains in 20 minutes in Orlando....so what should you do? We think of you daily & enjoy the updates. Love - Janice

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