Aaron's Hyper IgM Journey

Sunday, May 13, 2012


Wow!  I just went through all of the pictures since we left home for Cincinnati.  I know we have been through a lot, but reviewing it all in 5 minutes seemed overwhelming.  This is one of my favorite pictures.  It reminds of the little boy we had before transplant.  His favorite thing to do was run.  Now, he can hardly run.  In fact today he is limping and I am concerned that he has injured himself.  We used to struggle to get him to eat; now he eats almost as much as we do. 

I have to remind myself why we decided to do this transplant.  We truly want the best life possible for our son.  Without transplant, his life would likely be filled with many more infections, ICU stays and a short life span.  Now he has the chance at a full and normal life.

I saw a promotional ad for a motivational speaker today.  It hit me very personally.  "Instead of saying 'I have to', say 'I get to.'' (Jonnae Taylor)  So many people say I have to go to work, I have to go to the grocery store, or I have to study.  There are those out there that only wish they could do any of those things.  Some day Aaron will say "I get to play outside" or "I get to have friends" or "I get to have a sip of my Mother's drink" or "I get to go swimming." 

1 comment:

  1. You have done and are doing the right thing. He has come so far already. He will finish the marathon and will live a long, healthy, beautiful life. We think of Aaron all the time and look forward to the day when our boys are frolicking free again.