Aaron's Hyper IgM Journey

Sunday, February 5, 2012

Almost a Good Day

Today started off fantastic.  Aaron woke up talking like himself; better than he has in weeks.  The doctors had lots of positive things to say in rounds.  They said overall Aaron is doing great.  His GVH is looking much better.  His response to steroids is a very important indicator of how he might do in the future and he is responding very well to the steroids.  They are also going to decrease the steroids and plan to discharge us by the end of the week.

Then... the day turned bad.  Out of nowhere, Aaron's blood pressure sky rockets to 180/86 and 160/100.  The doctors wanted to wait and recheck several times.  I was freaking out knowing that high blood pressures can cause stroke.  I felt like they waited too long to take care of his fever and I didn't want that to happen again.  Finally, they gave him additional blood pressure medication.  His pressure went down for about 30 minutes and then right back up again.  This went on through the night.  Aaron stayed crawled up in a ball the rest of the day with me holding him.  He would not talk or watch TV. 

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