Aaron's skin became the worse it has looked since we were discharged from the hospital back in march. At this point, the biggest fear is Aaron getting chronic gvhd. This is usually irreversible and often deadly. They gave Aaron a large dose of steroid yesterday in the ER and his skin is looking much better. This is a really really really good sign. The problem is that with his gvh flare ups, we haven't been able to get him off of the immunosuppressive drugs. He has to get off these drugs before he can recover from all of this transplant stuff and before I can breathe a sigh of relief.
Aaron will be on a ten day course of steroids. I am going to take this time to take a break from worrying. There is nothing more I can do until the steroids are over. If they work great. If not, we will be heading back to Cincy.