Aaron's Hyper IgM Journey

Sunday, August 26, 2012

Skin looking better... Thank goodness

Aaron's skin became the worse it has looked since we were discharged from the hospital back in march.  At this point, the biggest fear is Aaron getting chronic gvhd.  This is usually irreversible and often deadly.  They gave Aaron a large dose of steroid yesterday in the ER and his skin is looking much better.  This is a really really really good sign. The problem is that with his gvh flare ups, we haven't been able to get him off of the immunosuppressive drugs.  He has to get off these drugs before he can recover from all of this transplant stuff and before I can breathe a sigh of relief.  

Aaron will be on a ten day course of steroids.  I am going to take this time to take a break from worrying.  There is nothing more I can do until the steroids are over.  If they work great. If not, we will be heading back to Cincy. 

There is nothing that wastes the body like worry, and one who has any faith in God should be ashamed to worry about anything whatsoever.
Mahatma Ghandi

1 comment:

  1. That's great to hear. We'll keep him in our thoughts and will pray that he responds well in the next 10 days. Xo