Aaron's Hyper IgM Journey

Saturday, August 4, 2012

Welcome Home Aaron

The ride home was interesting and took us awhile to get the hang of the new routine. We stopped about every thirty minutes for the first three hours.  Fortunately, the weather was great and the rest of the drive went pretty smoothly.

When we got home, Aaron was in awe with all of his toys. He went from toy to toy to toy not knowing what to play with first.  We have been home two full days and Aaron hasn't asked to watch the iPad or TV once.  We have watched hours of cartoons every day for the past eight months. I was afraid he would turn into a kid that sits and watches TV all day.  I am very thankful he likes his toys again.   He also has room to move now.   He runs, climbs the stairs, and dances a lot.

Our lives are back to how they were pretransplant.  In fact, Aaron's immune system is worse now than before.  Aaron can't be around other people.  We do not allow visitors yet and he can't be in public places.  As long as Aaron does not have complications, he could be off of his immunosuppressive therapy in December.  This would allow his immune system to improve and our lives will slowly become normal.  


  1. I am so glad you are home and Aaron can be as LOUD as you will let him in your house. I hope the next few months go well and Aaron's immune system gets back up to normal and he can live a full life!

  2. Prayers for continued health and normalcy...you are the best parents to such a special little boy...

    1. Thank you Jackie. Call me sometime. I would love to hear how you are doing. 407-558-8660